Dhia Amanda gets more than just the surgery she needed, but people she can now call family
- Dec 10, 2025
- 2 min read
Updated: Mar 23
Dhia Amanda was diagnosed with GNAO1 at the age of 2 years old. GNA01 is a neurodevelopmental disorder, an extremely rare genetic condition that causes severe dystonia – uncontrollable twisting, stiffening and violent spasms brought on by electrical storms in the brain. Dhia requires deep brain stimulation (DBS) surgery to prolong her life and break free from intensifying pain.
Amount Fundraised: RM 311,000
Suriana Welfare Society Malaysia says Thank YOU to every individual and corporate who contributed to change the life of Dhia Amanda for the better.
Every One Life changed is a testament to humanitarian victories.
Updates since 25/09/2025
Latest update
20/03/2026 via freemalaysiatoday.com
"This Aidilfitri, a little girl can finally rest. A rare brain disorder once trapped Dhia Amanda in relentless spasms. Then Malaysians stepped in. This Aidilfitri, the six-year-old who rarely knew peace is finally smiling.
Dhia Amanda rests comfortably in the arms of her father, Saifol Sujak Sulaiman, as her mother Nur Liyana Safiea and sister Dhia Auliya look on at their home. After life-changing brain surgery funded by public donations, Amanda is calmer and able to smile more often.
PETALING JAYA: The photograph feels almost sacred. Continue reading on Free Malaysia Today...
17/12/2025
Dhia Amanda has been discharged from the hospital and is now headed home! Get well soon...
16/12/2025
Dhia Amanda has come out from surgery and recovering in the post-operation room.
16/12/2025
Dhia Amanda is scheduled for DBS surgery on the 16th of December 2025, with funds still coming in from generous donors and supporters to fund her post-operative care.
11/12/2025
Closing in on Amanda's DBS surgery, Suriana with cheerful children from PAL Center, drops by for a visit with a high dose of courage to remind Amanda & family that they are not alone!
24/11/2025
The DBS equipment was ordered and paid for at RM 150,000, sent from U.S.A.
21/11/2025
Close to RM 200,000 was fundraised for Dhia Amanda through FMT News, Give.ASIA and personal & corporate outreach.
12/11/2025
Dhia Amanda underwent an MRI scan for a pre-DBS preparation.
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