Suriana Family Care & Support: Dhia Amanda
- Ashley Guneratne
- 1 day ago
- 1 min read
Dhia Amanda was diagnosed with GNAO1 at the age of 2 years old. GNA01 is a neurodevelopmental disorder, an extremely rare genetic condition that causes severe dystonia – uncontrollable twisting, stiffening and violent spasms brought on by electrical storms in the brain. Dhia requires deep brain stimulation (DBS) surgery to prolong her life and break free from intensifying pain.
Amount Fundraised: RM 311,000
Suriana Welfare Society Malaysia says Thank YOU to every individual and corporate who contributed to change the life of Dhia Amanda for the better.
Every One Life changed is a testament to humanitarian victories.
Updates since 25/09/2025
Present
Dhia Amanda is scheduled for DBS surgery on the 16th of December 2025, with funds still coming in from generous donors and supporters to fund her post-operative care.
24/11/2025
The DBS equipment was ordered and paid for at RM 150,000, sent from U.S.A.
21/11/2025
Close to RM 200,000 was fundraised for Dhia Amanda through FMT News, Give.ASIA and personal & corporate outreach.
12/11/2025
Dhia Amanda underwent an MRI scan for a pre-DBS preparation.
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